We’re doing things slightly differently this time. We’re focusing on kids with cancer. In August of this year, California’s youth who’ve been impacted by the devastation of pediatric cancer and rare diseases, went to Sacramento to inaugurate the first Pediatric Cancer Advocacy and Awareness Day, and lobbied California legislators to designate September 2026 as Childhood Cancer Awareness Month and sign on as co-sponsors with concurrent resolutions in the Assembly ACR 213 and the Senate SR 126, which were adopted and passed unanimously. This could not have happened without the support of my friend, Misha Mehta, who lobbied hospitals, companies, and foundations for sponsorship and funding, so that families who have been affected by pediatric cancer could travel from all over California as advocates for their loved ones without having to worry about expenses.
The first Pediatric Cancer Advocacy and Awareness Day was supported by multiple foundations and organizations, including but not limited to Amgen, Everyday Life Foundation for Rare Diseases, Stanford Medicine Children’s Health, the UCSF Oncology Department,the Neev Kolte Foundation, and Joey’s Wings.
Misha’s youngest son Neev Kolte, was diagnosed with DIPG, an incurable brain cancer, in August of 2020. At the time, there was no available treatment, and doctors told Neev’s parents to go home and create memories. Misha and her husband Sandeep refused to give up, and they fought to keep hope alive for Neev, finding phase 1 clinical trials for him. Neev, too, did not give up. He learned to walk four times in the fifteen months after his diagnosis, and just kept going. He passed away a month after his sixth birthday.
Misha and Sandeep still have not given up on finding a cure, or a treatment for DIPG. They established the Neev Kolte Foundation, in his memory, to lobby for funding and research.