Disability, Chronic Illness, & Culture
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Chronic illness, wellness, and the politics of “identity”
May 27, 2025
On the phrase "Stop making your chronic illness your whole identity"
A Particularly Brutal "Autism Acceptance" Month
April 23, 2025
We deserve better.
Medicaid & Healthcare Justice
February 26, 2025
Just some brief thoughts based on my own experiences.
Section 504 is Under Attack
February 11, 2025
We all need to do what we can to protect it.
RFK Jr's Confirmation Hearing is on Wednesday
January 26, 2025
What I'm worried about as a chronically ill, neurodivergent woman.
On COVID Surges & Denial
January 20, 2025
"Back to normal" is a myth.
Two poems I wrote in 2020
January 1, 2025
On pandemics & eugenics under capitalism
Centering Chronic Pain in the Discussions on US Healthcare
December 16, 2024
Don't let chronic pain patients get lost in these conversations.
Healthism: an introduction
December 5, 2024
For those unfamiliar with the term & how it applies to wellness culture
RFK Jr. Doesn't Care About Your Health
November 20, 2024
And neither does that wellness influencer selling you expensive supplements
Post-election Thoughts
November 16, 2024
I've been working on this for all of this week and I just want to get it out there already. Here are all my thoughts about the election results, the last...
Life with Irritable Heart Syndrome (POTS)
October 31, 2024
Today is the last day of Dysautonomia Awareness Month. I have been diagnosed with a type of Dysautonomia known as Postural orthostatic tachycardia syndrome,...
Chronic illness, climate change, climate grief
October 11, 2024
NOTE: I wrote this in the summer of 2023. I was about to post it, but then my grandmother died, so my focus was on a different kind of grief. I was reminded...
Pediatric Long COVID
September 12, 2024
It's Pediatric Long COVID Awareness Week, and kids are suffering due to our society's inaction & ableism.
On Thyroid Disorders & COVID
August 29, 2024
Protect your thyroid, take COVID precautions
Pride Month & the Exclusion of Queer Chronically Ill & Disabled People
July 1, 2024
"Masked sections" & "masks optional" aren't forms of accessibility
Mask Bans & Eugenics
June 17, 2024
I have not posted in months, mostly due to finishing the semester, but now that that's over, I want to get back into talking about disability rights issues...
The New CDC Guidelines, Capitalism, & Eugenics
March 13, 2024
Everyone should care about the updated CDC guidelines. These will harm vulnerable populations the most - chronically ill/immunocompromised people, disabled...
The Pandemic Response: Individualism, Exclusion, Isolation
February 24, 2024
Rochelle Walensky said it's comforting that the only people dying are the ones with comorbidities. Fauci said it's inevitable that the vulnerable will fall...
Venting about Chronic Pain on Pain Awareness Month
September 22, 2023
Chronic pain can feel so hopeless and yet people expect you to sugarcoat it. Talking about the reality can be bleak and depressing so if someone is fortunate...
Trauma, Disability, and Lack of Support for Survivors
September 11, 2023
Trigger Warning: Discussion of sexual assault, brief mention of suicide as an impact of trauma. Trauma is disabling in and of itself. Trauma can also lead to...
Neurasthenia 101
August 26, 2023
Note: In the Spring of 2023, I did my senior project for my Disability Studies degree on historical views on illness and how those have influenced modern...
“Protect the Vulnerable”: On Vulnerability, COVID, and Masks
August 26, 2023
We are all vulnerable. Wear a mask.
On Healthism, Sitting, Rest, & Shame
August 26, 2023
The healthism in our society made me ashamed of the amount of rest I need. According to Our Bodies Ourselves Today at Suffolk University, "Healthism, simply...
On Shame, Pride, & Disability: Thoughts on Disability Pride Month 2023
August 26, 2023
A lot of the time, it’s hard to feel truly proud of my disabilities. At best, I usually feel more neutral about my disabilities, aside from my passion for...
We Don’t Take Emotional Abuse Seriously Enough
August 26, 2023
Trigger Warning: Abusive relationships, particularly emotional abuse. I have known this for a while. I knew it before this past week, when Jonah Hill’s text...
Emergency Gallbladder Surgery Chronicles
August 26, 2023
From June 2023
Ableism & Bipolar Disorder
August 26, 2023
Here is an essay I started writing in 2017, forgot about for years, and finished up last night. It’s important to me because being aware of the ableism...
Ableism towards Fibromyalgia and ME/CFS patients
August 26, 2023
Originally published on my Medium account on ME/CFS and Fibromyalgia Awareness Day. Today is International ME/CFS and Fibromyalgia Awareness Day. These are...
Thoughts on Being Chronically Ill During a Pandemic: 2023 Version
August 26, 2023
The pandemic is not over. Anyone who tells you this is lying. Yes, even the president. People are still dying. People are still getting sick. People are...
On Fatigue
August 26, 2023
Fatigue is a huge part of my life, that I am sure I could write a million essays about. Here is something very short I wrote about how fatigue impacted me in...
Thoughts on Healthcare, Masking, and Accessibility
August 26, 2023
I am saddened to see many hospitals in the US drop their masking policies in a still ongoing pandemic without a thought about how this could especially...
Autism, Bullying, and Exclusion
August 26, 2023
Note: This is based on my experience growing up with undiagnosed autism that I only really found out about in my 20’s. It’s a subject I don’t talk about...
On Being a Chronically Ill College Student
August 26, 2023
From 2022
Productivity & Ableism
August 26, 2023
From 2022
The Hidden World of Chronic Pain
August 26, 2023
From 2021
Remote Learning & Accessibility
August 26, 2023
During this pandemic, “remote learning” has become a popular topic of discussion. We have seen the pitfalls of schools suddenly going remote when professors...
Bipolar Disorder and Identity
August 26, 2023
From 2021
Thoughts On Being Young With Osteoarthritis, and Why Jokes About Arthritis & Aging Annoy Me
August 26, 2023
From 2021
Inspiration porn
August 26, 2023
From 2021.
Childhood & Disability
August 26, 2023
I feel like disability in childhood is tragically overlooked. I remember my experience of having Fibromyalgia as a child fairly vividly. I remember the...
Memories of Fibromyalgia
August 26, 2023
The memory I recall the most vividly from my childhood — the one I think about often, the one that stands out the most — is the dizzy feeling I had at the...
“What Does Disability Pride Mean In 2020?”: An Incomplete Essay I Started in July 2020
August 26, 2023
Note: I found this when sorting through my Google Docs today. I could go back and finish it, but it was written at such a specific moment in the early days...
Beyond Accessibility: Acceptance & Understanding
August 26, 2023
Written July 2021
Chronic Disease Day 2021: SSI, Health Insurance, COVID
August 26, 2023
7/10/2021
On Ableism & Using Mental Illness as an Insult
August 26, 2023
Previously published on Medium 7/9/2021
4/20/20 - Sheltering from the Pandemic
August 26, 2023
I have been “sheltering” from the pandemic for one month and one week today. And last night I realized that my 2020 feels as if it was only about a month...
Misconceptions about Disability: Visible vs Invisible
August 26, 2023
Perhaps one of the most widespread misconceptions about disability is that a disability has to be visible. This has a lot of implications, as many many...
Introduction / Disability, Identity, & Definitions
August 26, 2023
I’m going to write about disability on here. Because of this, I figured I’d make this post for clarity. I identify as disabled. I have both chronic illnesses...