Hello friends,
I'm sorry I haven't written more recently.
My book draft is due in about a week, and there is
much more than a week's worth of book left to write.
This book is, I hope, a pleasant and clear depiction of American health finance and health policy: what structures and processes we have, those we want instead, what better world lays just within our grasp, if we only reach for it together. The basic knowledge of contemplating and navigating those institutions by which we are made healthy and safe, or (more often) held
back from safety and agency over our own bodies, has been made unnecessarily complicated. Failure to win care from this complicated game hits you like a meteor, and in the craters of these complications fester resentment, despair, and resignment. So I hope that I might be useful to those many people who wish to understand this small slice of the world more fully, and that they may share in the understanding that health and health equity is a thread which is drawn into a great tapestry in which you and I by our hopes and our needs are all together woven.
I have a favor to ask of you. It is essential to me that I depict how the stakes of the fight for healthcare differ across different kinds of people. What seems like a small or opaque policy tweak to a healthier or wealthier person can bring either salvation or damnation for another whose healthcare needs are more severe. The horizons of health injustice are dramatically expanded beyond insurance for someone whose health is denied them by the state, the police, by unsafe housing, by deindustrialization, or by the looming menace of ICE.
It is better to hear these stories in this book from the people who experience them instead of from my summarization. To this extent I'm interested in collecting stories and anecdotes about health, health justice, and the deprivation thereof. Would you please help me?
I want to learn more about the specific ways a person's identity or condition can affect their ability to access healthcare--or that a person can be denied healthcare, or the precursors of healthcare, by that identity or condition.
I am interested in hearing from anyone, and I am particularly interested in hearing from or learning about:
- Trans healthcare
- Immigrant healthcare
- People struggling with opioid use disorder, or their families
- Racism and health injustice
- Healthcare and housing
- Healthcare needs of domestic violence and sexual assault survivors
If you have something to share -- an anecdote, a piece of testimony, or just a sentence or two about how America has made your pursuit of healthcare more difficult -- I would love to hear it. Please reply to this email or fill out
this form (which has an option to keep it anonymous).
If you know someone who has something to share, please forward this email or form to them.
I might quote from your story in a relevant section of the book, attributed with your permission to whatever name you leave.
That's all. Have a nice 2019.