Not an Edge Case
Not an Edge Case I turned VoiceOver back on and my phone told me something about myself. “Touch accommodations are inactive while VoiceOver is on.” I’d set...
Safe, Fed, and Worn Down
Safe, Fed, and Worn Down I’m 34 and I live in a nursing home. I’m safe, fed, and have my physical needs met, but it wears on me. It’s the sameness, and...
The Gap Between the Principle and the Practice
The Gap Between the Principle and the Practice I agree with the disability rights movement. I believe people with disabilities should live in the community,...
They Actually Shipped It
They Actually Shipped It I wrote a review of NukeFire in August. It was an accessibility review. I’m a screen reader user, and I went through the client and...
Twenty-Two Dollars
Twenty-Two Dollars I have $22 to my name. That’s not a metaphor. That’s the balance. I’m a multiply disabled writer and advocate. I do accessibility testing,...
It Was in the File
It Was in the File Daisy sat in my room and said the sentence that should have been said fifteen years ago. Because of your autism diagnosis, you qualify for...
Chewing on the Quiet
Chewing on the Quiet I bought a chew tool. It’s a small piece of silicone I can bite down on, and it’s in my mouth a lot now. Before I had it, I tried not to...
As Independent as Possible
As Independent as Possible A mother is asked what her greatest hope is for her disabled daughter. She says she wants her daughter to become as independent as...
The Ramp, Not the Shortcut
The Ramp, Not the Shortcut There’s a conversation happening in the NVDA community right now about AI and the add-ons people are building with it. Some of it...
The Tide and the Undertow
The Tide and the Undertow I wrote about fatigue before. I called it a wave. That was only part of it. The wave is the part that crashes. It builds, it hits,...
They Found It and Stopped Looking
They Found It and Stopped Looking I was born with optic nerve hypoplasia. It’s the reason I’m blind. They found it early. That’s the problem. Finding the...
A Wall Built Out of Sound
A Wall Built Out of Sound I checked audiogames.net again last week. I hadn’t been there in a while, and I wanted to see what was new. Most of what I found...
I'm Using My Brain
I'm Using My Brain I keep seeing the same sentence in different words. “I used my fucking brain.” “Read an actual book. Write an actual text.” “Your...
The Standing Order
The Standing Order The new CNA didn’t know I needed shakes. She brought solid food and set it in front of me. I explained, and she went to find what I...
Fasting When You Can't Fast
Fasting When You Can't Fast The devotional told me to fast. It was the takeaway at the bottom of the day’s reading, the line I was supposed to carry with me....
AI Unlocked My Voice. Watermarking Could Take It Away.
AI Unlocked My Voice. Watermarking Could Take It Away. I was reading my email this morning when I came across a piece by Taylor Arndt. The title caught my...
What Good Days Look Like
What Good Days Look Like Most writing about disabled life focuses on what’s hard. The barriers, the fights, the fatigue, the grief. That writing matters....
NukeFire: A Post-Apocalyptic MUD That Built Accessibility Into the Wasteland
NukeFire: A Post-Apocalyptic MUD That Built Accessibility Into the Wasteland I wrote earlier this month about Erion, the MUD that finally got accessibility...
Valedictorian, Interrupted
Valedictorian, Interrupted I was valedictorian at the Texas School for the Blind and Visually Impaired. I had the highest TAKS test scores in my grade level....
Inaccessible to the People They're Trying to Reach
Inaccessible to the People They're Trying to Reach There are two Christian ministries I know of for people with chronic illness. One is called Diamonds. The...
